"I am interested in people being able to benefit from the use of my data and other relevant data, because it helps in making plans, improving the system and checking on progress of what is being given to us - the treatment we're getting"
Patient advocate, use MY data
Members - patient advocates who are either patients, relatives or carers
Associate Members – who are clinicians, researchers, charities, researchers, public & commercial sector workers. They are united by an interest in sharing healthcare data to improve patient outcomes under appropriate levels of consent, security and privacy.