A movement for patients, relatives and carers. Harnessing the patient voice to build confidence in the use of patient data for research and analysis.
What are the rewards of using patient data?
"I believe as a patient that I have a responsibility to the rest of society in permitting the use of my data. But I also have the right to ask clinicians and researchers, or rather demand, that my data is used – remove the barriers – used for purposes of audit, comparison, research. Ask questions and find answers, for me and for all the other patients like me."
Patient advocate, use MY data