A movement for patients, relatives and carers. Harnessing the patient voice to build confidence in the use of patient data for research and analysis.

Get involved in the use MY data movement

"If data is not used, people will die."

Patient advocate, use MY data

Join use MY data - there is strength in numbers...! You will be part of a movement which believes that your data should be used.


use MY data members are patient advocates who believe that their patient data should be used to improve outcomes for future patients.

The majority of members are cancer patient advocates. Membership is open to all patients and there are a small number of members with illnesses other than cancer.


As well as the patients advocates who comprise the use MY data group there is a circulation list for those interested in the work and development of the group - associates of use MY data. This ensures that all interested parties are kept up to date and have the opportunity to input into the movement.

Associate members of use MY data comprise charity workers, academics, researchers, and public sector workers.

To join please email getinvolved@useMYdata.org.uk