A movement for patients, relatives and carers.
Harnessing the patient voice to build confidence
in the use of patient data for research and analysis.
A patient perspective on using samples and data for research
Health and Social Care (National Data Guardian) Act 2018
Read how and where Understanding Patient Data has been strategically effective
Making NHS data work for everyone, includes use MY data contribution
Our data-driven future in healthcare - new report published
Updated paper: Impact on cancer data usage of different patient Opt-out choices
Synthetic and anonymous data that mimics Cancer Registration data
Article from the Open Data Institute
NHS Digital publish the latest numbers for National Data Opt-outs
The new Gift Relationship between the public and the NHS. Not blood but data.
Report: National Data Opt-out and Primary Care information
Latest Cancer Patient Experience Report (2017) published
What if the NHS Constitution included our responsibility to let our data be used
New Code to allow the NHS to benefit from data-driven technologies
The Swallows Head and Neck Cancer Support Group story so far
Latest figures on the National Data Opt-out available from NHS Digital