A movement for patients, relatives and carers. Harnessing the patient voice to build confidence in the use of patient data for research and analysis.
The patient voice in the expanding data world
Joined up Yorkshire and Humber report
Health Data Research Alliance to transform future health and care
Intelligent Sharing: unleashing the potential of health and care data
New blog by use MY data - Say what you do; Do what you say
New survey published
"Giving something back"": A systematic review and ethical enquiry
A patient perspective on using samples and data for research
Health and Social Care (National Data Guardian) Act 2018
Read how and where Understanding Patient Data has been strategically effective
Making NHS data work for everyone, includes use MY data contribution
Our data-driven future in healthcare - new report published
Updated paper: Impact on cancer data usage of different patient Opt-out choices
Synthetic and anonymous data that mimics Cancer Registration data
Article from the Open Data Institute
NHS Digital publish the latest numbers for National Data Opt-outs