A movement for patients, relatives and carers.
Harnessing the patient voice to build confidence
in the use of patient data for research and analysis.
The Swallows Head and Neck Cancer Support Group story so far
Latest figures on the National Data Opt-out available from NHS Digital
Macmillan`s Julie Flynn guides us through the complicated world of cancer data
Consent and participation in the 100,000 Genomes Project - public attitudes
Telegraph Article: 150,000 medical records shared against patients wishes
Written Ministerial Statement (150,000 medical records shared)
The implications of the National Data Opt-out for cancer patients
Best practice in using National Cancer Patient Experience Survey data to improve services
Why do we need to talk about patient data?
Data protection versus health protection - the need to balance data sharing and data protection
Patient data saves lives. Here's how we use and protect it
May 25 2018 marks the introduction of GDPR, DPA 2018 and Opt-outs
Data sharing and technology: Exploring the attitudes of people with asthma
Kings Fund briefing: the implications of the opt-out and GDPR
NHS England (NHSE) announces the first three Local Health and Care Record Exemplars
NHS England (NHSE) has given updated information about the Opt-out