use MY data

Trials results to be published "No more excuses": Major global research funders take strong lead on trial transparency The positive power of transparency Thought provoking blog by Jemma Batte, Clinical Fellow at BUPA Member`s story Story published by National Association of Laryngectomy Club (NALC) NIHR Patient Ambassadors Find out about how to become a patient ambassador for the NIHR EU Report: Data Protection Regulation Impact of Data Protection Regulation on Personal Data Use in Cancer Research Citizens Juries’ – Connected Health Cities Read the report and listen to jurors views King`s Fund winners The winners of the Kings Fund "The NHS if..." have been announced King`s Fund Essay use MY data entry to the The Kings Fund "The NHS if...." competition My data, my care - Richmond Group How better use of data improves health and wellbeing New GMC Guidance GMC guidance on Confidentiality: good practice in handling patient information Review of Informed Choice for Cancer Registration See the published report, plus the use MY data response Patient video stories added New patient voices, filmed at the Cancer Data and Outcomes Conference The benefits of data The Brain Tumour Charity has set up a page that looks at the benefits of data United Nations calls for transparency United Nations calls for clinical trial transparency, news from AllTrials care.data programme closed NHS England has taken the decision to close the care.data programme care.data opt out numbers published Numbers of patients opting out of care.data, by GP Practice National Data Guardian Review of Data Security, Consent and Opt-Outs now published Patient data statements Statements from patients and advocates at the Cancer Data and Outcomes Conference Conference Presentations Presentations from the Cancer Data and Outcomes Conference now available Patient Stories New section added to the website to allow patients to give their views about data usage Data Citation vote results See the results from the use MY data poll on data citation wording

Trials results to be published
"No more excuses": Major global research funders take strong lead on trial transparency
The positive power of transparency
Thought provoking blog by Jemma Batte, Clinical Fellow at BUPA
Member`s story
Story published by National Association of Laryngectomy Club (NALC)
NIHR Patient Ambassadors
Find out about how to become a patient ambassador for the NIHR
EU Report: Data Protection Regulation
Impact of Data Protection Regulation on Personal Data Use in Cancer Research
Citizens Juries’ – Connected Health Cities
Read the report and listen to jurors views
King`s Fund winners
The winners of the Kings Fund "The NHS if..." have been announced
King`s Fund Essay
use MY data entry to the The Kings Fund "The NHS if...." competition
My data, my care - Richmond Group
How better use of data improves health and wellbeing
New GMC Guidance
GMC guidance on Confidentiality: good practice in handling patient information
Review of Informed Choice for Cancer Registration
See the published report, plus the use MY data response
Patient video stories added
New patient voices, filmed at the Cancer Data and Outcomes Conference
The benefits of data
The Brain Tumour Charity has set up a page that looks at the benefits of data
United Nations calls for transparency
United Nations calls for clinical trial transparency, news from AllTrials
care.data programme closed
NHS England has taken the decision to close the care.data programme
care.data opt out numbers published
Numbers of patients opting out of care.data, by GP Practice
National Data Guardian
Review of Data Security, Consent and Opt-Outs now published
Patient data statements
Statements from patients and advocates at the Cancer Data and Outcomes Conference
Conference Presentations
Presentations from the Cancer Data and Outcomes Conference now available
Patient Stories
New section added to the website to allow patients to give their views about data usage
Data Citation vote results
See the results from the use MY data poll on data citation wording

Trials results to be published

The positive power of transparency

Member`s story

NIHR Patient Ambassadors

EU Report: Data Protection Regulation

Citizens Juries’ – Connected Health Cities

King`s Fund winners

King`s Fund Essay

My data, my care - Richmond Group

New GMC Guidance

Review of Informed Choice for Cancer Registration

Patient video stories added

The benefits of data

United Nations calls for transparency

care.data programme closed

care.data opt out numbers published

National Data Guardian

Patient data statements

Conference Presentations

Patient Stories

Data Citation vote results