A movement for patients, relatives and carers.
Harnessing the patient voice to build confidence
in the use of patient data for research and analysis.
Article from the Open Data Institute
NHS Digital publish the latest numbers for National Data Opt-outs
The new Gift Relationship between the public and the NHS. Not blood but data.
Report: National Data Opt-out and Primary Care information
Latest Cancer Patient Experience Report (2017) published
What if the NHS Constitution included our responsibility to let our data be used
New Code to allow the NHS to benefit from data-driven technologies
The Swallows Head and Neck Cancer Support Group story so far
Latest figures on the National Data Opt-out available from NHS Digital
Macmillan`s Julie Flynn guides us through the complicated world of cancer data
Consent and participation in the 100,000 Genomes Project - public attitudes
Telegraph Article: 150,000 medical records shared against patients wishes
Written Ministerial Statement (150,000 medical records shared)
The implications of the National Data Opt-out for cancer patients
Best practice in using National Cancer Patient Experience Survey data to improve services
Why do we need to talk about patient data?