Our mission

use MY data is a movement of patients, carers and relatives

use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.

use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.

use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.






Our personal data pledges.....

use MY data is a movement of patients, relatives and carers. As a movement our voices are stronger together, but we also each have an individual responsibility to do what we can, however big or small, to improve the dialogue and transparency about how our data is used.

So we asked our patients, carers and advocates, plus others attending a recent workshop, to make their own pledges about data. Read some of these below, and make your own pledge.....


× use MY data

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