Our mission

use MY data is a movement of patients, carers and relatives

use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.

use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.

use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.

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Policy: Our stance on Transparency

Transparency

Transparency should underpin everything and is essential if the trust and support of patients and the public is to be maintained and developed.  Transparency means operating in such a way that it is easy for others to see what actions are performed. In a nutshell – Say what you do, do what you say.

Our guiding principles for transparency:

  • Accessible – easy access to information
  • Understandable – the right language for the audience
  • Relevant – addresses audience concerns
  • Useable – in a form that meets the audience needs
  • Assessable – is checkable/provides sufficient detail
  • Being as pro-active with ‘bad news’ as with ‘good news’
  • Being timely with communication

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