A movement for patients, relatives and carers. Harnessing the patient voice to build confidence in the use of patient data for research and analysis.

Recent publications using patient data

There have been a number of publications over recent months, listed these below for your information, and for signposting others:

SACT 2014 completeness data briefing/short report and appendix (results by trust):

Completeness of the national Systemic Anti-Cancer Therapy data set compared with the Cancer Waiting Times data set<http://www.ncin.org.uk/view?rid=3153>

Tables showing proportion of patients matched across CWT and SACT data sets by NHS England region and NHS hospital trust<http://www.ncin.org.uk/view?rid=3154>

Be Clear on Cancer prostate campaign (October/November 2014) interim evaluation report:

Be Clear on Cancer: Prostate cancer awareness local pilot campaign Interim evaluation results<http://www.ncin.org.uk/view?rid=3145>

Cancer Waiting Times trends (2009/10 to 2014/15) data briefing:

Trends in Cancer Waiting Times metrics, England, 2009/10 to 2014/15<http://www.ncin.org.uk/view?rid=3101>

Updated Cancer Outcomes Metrics - quarterly metrics by CCG, stage up to March 2014 and EP up to September 2015

Cancer Outcomes: Stage at Diagnosis and Emergency Presentations<http://www.ncin.org.uk/cancer_type_and_topic_specific_work/topic_specific_work/cancer_outcome_metrics>

My NHS (NHS Choices)

Performance of cancer diagnostic indicators in England<https://www.nhs.uk/service-search/performance/results?resultsViewId=1170>

Cancer stage indicator in the Public Health Outcomes Framework (updated for 2014, by Local Authority)

2.19 - Cancer diagnosed at early stage (experimental statistics)<http://www.phoutcomes.info/public-health-outcomes-framework#gid/1000042>

Routes to Diagnosis

Routes to Diagnosis - 38 tumour site-specific short reports examining the 2006 to 2013 results<http://www.ncin.org.uk/publications/routes_to_diagnosis>

Costs of cancer for colorectal, breast, prostate and lung:

Cost of care for cancer patients in England: evidence from population-based patient-level data<http://www.nature.com/bjc/journal/v114/n11/pdf/bjc201677a.pdf>

Updated Office for Data Release request form and associated guidance notes to prospective applicants

ODR Data Request Form (April 2016 v2.0)<http://www.ncin.org.uk/view?rid=2989>

Completing the Office for Data Release data request form, version 2, April 2016<http://www.ncin.org.uk/view?rid=2990>