A movement for patients, relatives and carers. Harnessing the patient voice to build confidence in the use of patient data for research and analysis.

Current data matters: Review of Informed Choice for Cancer Registration

Review of Informed Choice for Cancer Registration published (30 November 2016)

Cancer Research UK and Macmillan Cancer Support have reviewed how cancer patients in England could be better informed about the use of their data in cancer registration, and how they can choose whether their data is included.

The results of the review have been jointly published by Cancer Research UK and Macmillan Cancer support, and are available below:

Cancer Research UK: Improving awareness of the English cancer registry amongst patients, professionals and the public.

Macmillan Cancer Support: Improving awareness of the English cancer registry amongst patients, professionals and the public.

use MY data response

The response from use MY data members to the publication is now available here:

Read the use MY data members response here.

 

Next steps

The next use MY data patient workshop (see the Events page), scheduled for 26 January 2017, will include an update on the review.