New Resource quick-guide

(Published to the use MY data site on 2019-05-29)

Understanding Patient Data (UPD); new Resource quick-guide

What is the quick-guide?

The quick-guide brings UPD resources together in one short, simple summary. It aims to help users to:

  • find UPD resources more quickly
  • address patient and public common concerns
  • feel supported in championing best practice.

This resource was developed following feedback from our supporters, who wanted to be able to share UPD information with new audiences more easily and save time when trying to locate our resources.

The guide is available here: .

Produced by use MY data

Further details from

Please use the patient data citation:
"This work uses data provided by patients and collected by the NHS as part of their care and support"

The patient data citation was conceived and developed by the patients and carers in the use MY data patient movement. It has been widely adopted by data and research organisations, and recommended for adoption by the major research funders in the UK.

About use MY data

use MY data is a movement of patients, carers and relatives

use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.

use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.

use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.


Our vision

Our vision is of every patient willingly giving their data to help others, knowing that effective safeguards to maintain the confidentiality and anonymity of their data are applied consistently, transparently and rigorously.