Association of Medical Research Charities - Report - Making a difference: Impact Report 2019 - UK focus
A report from the Association of Medical Research Charities (AMRC) following on from its initial Impact Report in 2017 and "incorporating two more years of data and new stories of how charity-funded research has impacted patients and society."
The report is structured around the five areas of impact:
The report is available here -
Produced by use MY data
Further details from firstname.lastname@example.org
Please use the patient data citation:
"This work uses data provided by patients and collected by the NHS as part of their care and support"
The patient data citation was conceived and developed by the patients and carers in the use MY data patient movement. It has been widely adopted by data and research organisations, and recommended for adoption by the major research funders in the UK.
use MY data is a movement of patients, carers and relatives
use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.
use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.
use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.
Our vision is of every patient willingly giving their data to help others, knowing that effective safeguards to maintain the confidentiality and anonymity of their data are applied consistently, transparently and rigorously.