Researchers from the Health Foundation, Institute for Fiscal Studies, The King’s Fund & the Nuffield Trust have joined forces to produce this report which considers the impact of technology on the NHS -
Understanding Patient Data (UPD) has produced a response to the report - http://understandingpatientdata.org.uk/news/future-uses-of-technology
The report states that “ Data can provide new ways for the NHS to learn, improve and generate new research – alongside artificial intelligence (AI), which is providing new analytical capacity for diagnosing patients, effective triage and logistics”.
However, one of the key findings is:
“People generally have relatively little knowledge about how the NHS and commercial organisations use data for health research, which may be responsible for mistrust in some cases. Transparent public dialogue is needed about how data is currently used; what the opportunities are for the future; and how risks can be mitigated. While it is vital to balance the benefits of sharing data with concerns about security and confidentiality, these concerns should not be used as a barrier to progress.”
UPD has highlighted the low support for commercial organisations accessing health data to undertake health research – “It shows a decrease in support compared to a similar survey conducted by Wellcome and Ipsos MORI in 2016. It also found that “relatively few people know much about how commercial organisations use data”. Knowledge of how the NHS uses data was also “fairly poor”.”
Produced by use MY data
Further details from email@example.com
Please use the patient data citation:
"This work uses data provided by patients and collected by the NHS as part of their care and support"
The patient data citation was conceived and developed by the patients and carers in the use MY data patient movement. It has been widely adopted by data and research organisations, and recommended for adoption by the major research funders in the UK.
use MY data is a movement of patients, carers and relatives
use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.
use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.
use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.
Our vision is of every patient willingly giving their data to help others, knowing that effective safeguards to maintain the confidentiality and anonymity of their data are applied consistently, transparently and rigorously.