Our mission

use MY data is a movement of patients, carers and relatives

use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.

use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.

use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.

Workshop Registration Form
Workshop: Patient data - balancing access and protection, 7 May 2019, London

Patient data saves lives and improves outcomes and yet researchers are struggling to access patient data. This workshop will bring together data access bodies - the controllers/guardians of patient data - for a collective discussion. Our aim is for the patient voice to help the organisations find solutions.

The workshop is aimed at patients, relatives and carers, the public and professionals and is open to all who are interested.

** Please note that the workshop registration is now closed.


If you would like to be added to the reserve list, please email alison@usemydata.org.uk.