Our mission

use MY data is a movement of patients, carers and relatives

use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.

use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.

use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.

Joining use MY data

The more members and associate members we have, the stronger our voice becomes in campaigning for patient data to be used to save lives and improve treatments. 

The benefits of joining:

  • Being part of a community, which works to build confidence in the use of patient data, to save lives and improve outcomes.
  • Receiving regular updates about patient data matters including: engagement opportunities, event information, patient data developments, opportunity to input into consultations.
  • Receiving guidance/support on patient data information and queries (via the Secretariat).
  • Direct invitations to use MY data events.

There is no charge to join use MY data.  

To join please contact join@usemydata.org.uk.

Please specify which category of membership you are in:

  • Members - patient advocates who are either patients, relatives or carers
  • Associate Members – who are clinicians, researchers, charity workers, academics, public and commercial sector workers.  They are united by an interest in sharing healthcare data to improve patient outcomes under appropriate levels of consent, security and privacy.


Recruitment information

Overview of use MY data

Information & Guidance Document for Members

Information & Guidance Document for Associate Members



Privacy policy