Clinical Practice Research Datalink (CPRD) is advertising for Lay Member vacancies. The deadline to apply is 12pm on 7th May.
Creation of the first national linked colorectal cancer dataset in Scotland: prospects for future research and a reflection on lessons learned
The National Disease Registration Service is hosting a NDRS Lynch syndrome webinar which will give an overview of the first ever Lynch syndrome database and how it can be used.
Tools for Life: Data Sharing and Public Health is a Wellcome Trust public engagement project. It is hosting the online event Lets Talk about Health Data Sharing
The National Disease Registration Service (NDRS) is publishing a series of data stories and asking use MY data to comment on each one, bringing a patient perspective to the use of patient data.
The ECHOES Consortium is seeking lay members to sit on the Application Steering Group. The ECHOES Consortium is a data driven research project
MQ, the mental health research charity has published a MQ Data Science 2020 podcast.
Read the use MY data response to the Goldacre Review on the use of health data for research and analysis
Bower Cancer Intelligence UK is seeking patients, carers and members with an interest in health care data to join its Patient-Public Group (PPG).
The report Making every patient count: a five-point plan to improve data collection for metastatic breast cancer patients raises concerns in relation to our knowledge of the treatment of patients with Metastatic Breast Cancer.
The National Institute for Health and Research (NIHR) is hosting a training webinar Introduction to statistics in health and medical research
The Royal Statistical Society (RSS) has published the report Statistics, Data and Covid: Ten statistical lessons the Government can learn from the last year.
The Centre for Data Ethics and Innovation CDEI has published the report COVID-19 repository and public attitudes retrospective
Understanding Patient Data (UPD) has announced a project Engaging with Black & South Asian???people on equitable data collection.
The National Cancer Research Institute (NCRI) Consumer Forum is seeking patients or carers with a strong interest in cancer research, who want to help improve outcomes and experiences for other patients.
The Department of Health & Social Care (DHSC) has announced a New review into use of health data for research and analysis