CONSULTATION RESPONSE: UK Parliament Inquiry- digital data: the right to privacy, March 2022

CONSULTATION RESPONSE: ABPI Consultation on industry principles for use of health data, March 2022

CONSULTATION RESPONSE: Department for Culture, Media & Sport, Data: A new direction, Nov 2021

CONSULTATION RESPONSE: UK Health Data Research Alliance: feedback on a data use registers Green Paper, September 2021

CONSULTATION RESPONSE: NHSX Data Strategy: 'Data Saves Lives: Reshaping Health and Social Care with Data', July 2021

CONSULTATION RESPONSE: Goldacre Review: use of health data for research and analysis, March 2021

CONSULTATION RESPONSE: Department for Digital, Culture, Media & Sport (DCMS): The National Data Strategy, November 2020

INVITED SUBMISSION: NHS Digital: Member responses to inform the development of Trusted Research Environments, October 2020

WORKSHOP SUMMARY: Summary of our workshop: The COVID-19 exit strategy - what next for patient data? and our
FOLLOW UP LETTER to NHSX about the need for a data release register for the NHSX COVID-19 Data Store, October 2020

CONSULTATION RESPONSE: National Data Guardian: Caldicott Principles: a consultation about revising, expanding and upholding the principles, September 2020

CONSULTATION RESPONSE: IG guidance on using video-conferencing/consultation tools, August 2020

ARTICLE RESPONSE: Article by Understanding Patient Data: A new approach to decisions about data,, July 2020

INVITED RESPONSE: Draft documents from NHSX: IG Guidance for Review, July 2020

CONSULTATION RESPONSE: HDR-UK: How can we put the UK at the forefront of data science to enable discoveries that improve people's lives? Your ideas and suggestions, July 2020

INVITED RESPONSE: PHE: We were asked by PHE if our membership would like to suggest topics for their future events, June 2020

CONSULTATION RESPONSE: Trusted Research Environments (TRE): A strategy to build public trust and meet changing health data science needs, May 2020

CONSULTATION RESPONSE: :Private Healthcare Information Reporting Change Proposal, May 2020

CONSULTATION RESPONSE: ICO Guidance on the Artificial Intelligence auditing framework, cover letter and completed questionnaire, April 2020

LETTER: Chair of the Independent Inquiry - Data sharing between the Lewisham and Greenwich Hospitals NHS Trust and Experian, March 2020

CONSULTATION RESPONSE: ICO and Turing Institute - Consultation on the ICO's ExplAIn draft guidance, completed questionnaire, January 2020

CONSULTATION RESPONSE: MHRA consultation - Seeking views on how we engage and involve patients and the public in our work and completed questionnaire, October 2019

CONSULTATION RESPONSE: NICE consultation on the use of broader data and analytics, September 2019

CONSULTATION RESPONSE: NHSX consultation on Information Governance Glossary, September 2019 together with the annotated document

CITIZENS JURY: What constitutes a fair partnership between the NHS and researchers, charities and industry on uses of NHS patients' data and NHS operational data?, September 2019

CONSULTATION RESPONSE: ICO consultation on the draft updated data sharing code of practice, August 2019

CONSULTATION RESPONSE: DHSC consultation on 'Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation, August 2019

CONSULTATION RESPONSE: The UK Government's intention to develop a National Data Strategy, July 2019

PAPER: use MY data position on Digital Innovation Hub bids, June 2019

WORKSHOP SUMMARY: Patient data - balancing access and protection; All talk and no access?, May 2019

CONSULTATION RESPONSE: Consultation by the National Data Guardian, March 2019

LETTER: To NHSE Medical Director about National Breast Audit, December 2018

- response to the letter received here

WORKSHOP SUMMARY: The patient voice in the expanding data world, November 2018

PAPER: The National Data Opt-out what it means for cancer registration data, November 2018

PAPER: Rebalancing the NHS Constitution, September 2018

CONSULTATION RESPONSE: Consultation on the new Centre for Data Ethics and Innovation, August 2018

WORKSHOP SUMMARY: Your data, your control (use MY data workshop), May 2018

CONSULTATION RESPONSE: use MY data response to PHE call for evidence - MoU for data sharing between NHS Digital & Home Office

WORKSHOP SUMMARY: Primary Cares pivotal role regarding patients and their data, December 2017

WORKSHOP SUMMARY: Commercial uses of patient data report, October 2017

CONSULTATION RESPONSE: to the APPGC Inquiry, August 2017