Our mission

use MY data is a movement of patients, carers and relatives

use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.

use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.

use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.


Patient Advocate case studies

A key role of use MY data is to give a forum for patients, advocates and carers to have more of a voice in how data is used. These short case studies contain a range of views and opinions from members, and are all freely available for reuse. All we would ask is that you reference use MY data members as the source. You may also be interested in the member video messages and short quotations.



.
About us / Funders / Contact / Membership