use MY data is a movement of patients, carers and relatives
use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.
use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.
use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.
Trust and transparency: GP Data for planning and research
Wednesday, 16 June, 11.00 - 12.30 In this webinar, we explored the circumstances around the proposed GP Data for Planning and Research (GPDPR). In particular, we wanted to give patients, relatives and carers the opportunity to communicate directly with those in charge of the programme, and with a wider panel with different perspectives. We wanted a dialogue about the GDPDR, to ensure there is a balanced debate about anticipated benefits versus potential risks. The webinar was devised by patients to bring a patient voice to the discussions. We heard about the development of the GPDPR, its aims and ambitions. We then explored with delegates what needs to be done to make the GPDPR a success, in the interests of patients.
Key themes raised during the webinarA set of key themes, issues and actions were raised by and with our Panel Members, which are shown below. We would also encourage you to watch the full webinar recording.
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