A trusted patient voice on patient data - our standards for engagement

use MY data welcomes engagement with external bodies (organisations and individuals).  As a trusted patient voice on patient data, we engage with a variety of organisations.  Our work is not about providing approval or endorsement, rather our Members use their lived experience to provide views on the use of patient data.

We have a clear set of Engagement Criteria, which have been defined by our membership, which describe the principles by which we engage with other external bodies.  

Read our Standards for Engagement with External Bodies here

As a priority, the Secretariat always strives to ensure that our Members are reimbursed for regular engagement work.  For some engagement arrangements, use MY data as an organisation receives a contributory payment, which goes towards the running of use MY data.



Contact us

email: contact@usemydata.org.uk

"the only independent patient movement in the UK focused on patient data"
use MY data is registered as a not for profit company limited by guarantee in England and Wales (14425977)

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