use MY data is a movement of patients, carers and relatives
use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.
use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.
use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.
Show me my data!
Wednesday, 03 March 2021
The webinar focused on the topic of patients being able to see, interact and even make corrections to their own health records. The webinar explored the reality about patient accessible, and/or patient-held records, across the UK, together with constraints, blockers and enablers.
We heard from organisations who already provide patient access or patient portals and we explored how these organisations fit together, and whether the NHS App is a solution.
"It shouldn’t take a patient to have a bad experience, for them to understand the power of their data!"
“Don’t shelter patients – they need the data and the tools”