What we do
We bring the patient voice to discussions about patient data | |
We campaign and influence on a range of issues around using patient data | |
We have a clear set of data-principles which we encourage others to follow | |
We act as critical friends to organisations which hold patient data |
What we don't do
We do not hold patient data | |
We do not endorse specific organisations | |
We do not stray outside the patient data field |
Patient data news
Mission Statement
use MY data is a movement of patients, carers and relatives
use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.
use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.
use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.