Our mission

use MY data is a movement of patients, carers and relatives

use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.

use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.

use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.


use MY data & Welsh Parliament/Senedd Cymru

Monday, 27 March, 11:00 to 16:00 

use MY data was invited give evidence into a one-day inquiry into data justice and the use of personal data in the Welsh NHS

The inquiry is being held by the Equality and Social Justice Committee of the Welsh Parliament/Senedd Cymru and the session is on Monday, 27 March, 11:00 to 16:00 with the use MY data session running from 11:30 to 12:45.   

use MY data will be represented by Dr Rob French, Associate Member & Researcher, Cardiff University of Medicine and our Expert Data Adviser, Chris Carrigan.

The Committee has published details of the session and the Inquiry’s purpose here

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