use MY data

Our mission

use MY data is a movement of patients, carers and relatives

use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.

use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.

use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.

Our Previous Funders Previous funding for the Secretariat and our workshops: DATA-CAN - The Health Data Research Hub for Cancer https://www.data-can.org.uk/ Macmillan Cancer Support https://www.macmillan.org.uk/ National Cancer Intelligence Network (Public Health England) http://www.ncin.org.uk/ Previous support for the use MY data events planning has been provided by Bowel Cancer Intelligence UK https://bci.leeds.ac.uk/ Venues for workshops and Advisory Group meetings have previously been supplied by : DATA-CAN - The Health Data Research Hub for Cancer https://www.data-can.org.uk/ IQVIA https://www.iqvia.com/ Understanding Patient Data https://understandingpatientdata.org.uk/ Incisive Health https://www.incisivehealth.com/ Expenses for patients, relatives and carers to attend a workshop or webinar have previously been provided by: DATA-CAN - The Health Data Research Hub for Cancer https://www.data-can.org.uk/ NHS Digital https://digital.nhs.uk/ Lodge Moor Consulting http://www.lodge-moor.co.uk Providing funding for specific projects: Roche https://www.roche.com/ Roche provided a grant to support ‘The Issue with Tissue’ campaign. A condition of the grant requires us to note: “This activity has been supported by a grant from Roche Products Limited. Roche Products Limited has had no control over the educational content of this activity.”

Our Previous Funders

Previous funding for the Secretariat and our workshops:

DATA-CAN - The Health Data Research Hub for Cancer https://www.data-can.org.uk/
Macmillan Cancer Support https://www.macmillan.org.uk/
National Cancer Intelligence Network (Public Health England) http://www.ncin.org.uk/

Previous support for the use MY data events planning has been provided by Bowel Cancer Intelligence UK https://bci.leeds.ac.uk/

Venues for workshops and Advisory Group meetings have previously been supplied by :

DATA-CAN - The Health Data Research Hub for Cancer https://www.data-can.org.uk/
IQVIA https://www.iqvia.com/
Understanding Patient Data https://understandingpatientdata.org.uk/
Incisive Health https://www.incisivehealth.com/

Expenses for patients, relatives and carers to attend a workshop or webinar have previously been provided by:

DATA-CAN - The Health Data Research Hub for Cancer https://www.data-can.org.uk/
NHS Digital https://digital.nhs.uk/
Lodge Moor Consulting http://www.lodge-moor.co.uk

Providing funding for specific projects:

Roche https://www.roche.com/
Roche provided a grant to support ‘The Issue with Tissue’ campaign. A condition of the grant requires us to note: “This activity has been supported by a grant from Roche Products Limited. Roche Products Limited has had no control over the educational content of this activity.”