Our Calls to Action and Position Statements
We have developed a range of Position Statements describing use MY data's position on several areas of patient data usage and policy. These are free to use.
Transparency should underpin everything and is essential if the trust and support of patients and the public is to be maintained and developed. Transparency means operating in such a way that it is easy for others to see what actions are performed. In a nutshell – Say what you do, do what you say.Read our Transparency Principles here
Synthetic data is designed to look closely like the real data it represents, but is completely fictitious. We describe how we think synthetic data should be used to make research more
A use MY data report which followed our May 2018 workshop, “Your data, your control”, explored how patients, who want to make sure that their consented samples and data are used for medical research, can ensure that this happens.Read our call to action here
"the only independent patient movement in the UK focused on patient data"
use MY data is registered as a not for profit company limited by guarantee in England and Wales (14425977)