use MY data is a movement of patients, carers and relatives
use MY data supports and promotes the protection of individual choice, freedom and privacy in the sharing of healthcare data to improve patient treatments and outcomes.
use MY data endeavours to highlight the many benefits that appropriate usage of healthcare data can make, to save lives and improve care for all.
use MY data aims to educate and harness the patient voice to understand aspirations and concerns around the use of data in healthcare delivery, in service improvement and in research, aimed at improving patient decision making, treatment and experience.
Our Impact
Recognising the patient contributionRead about the development and implementation of our Patient Data Citation Education and informationWe host regular events examining patient data topics, as requested by our Members. We update our Membership on a weekly basis, with a recent patient data items and engagement opportunities Listening and engagementOur unique status as a patient-led movement has enabled us to cut across the ‘worry spectrum’ and bring different views together The National Data Opt-out: Getting information to patientsA use MY data survey across Primary Care Helping patients understand their data choicesThe National Data Opt-out and what it means for cancer patients Stimulating national debate‘What-if’ paper on patients’ rights and responsibilities Campaighing and influencingJoint campaign on low use of tissue samples Specialist patient input to national patient data workuse MY data members provide expert input into a range of activities & bodies Coordinating a patient voice on consultations and policyUniquely, as a patient movement, we have coordinated responses to several national consultations, directly using the words of our members. Read more here.
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